Thursday, July 30, 2009

It's now official. After a week of ups and downs, we've heard from Houston. As of Monday it was tentative to be there on August 1 to start the process. As of yesterday morning, it was definite...we were to be in Houston on Monday. Nichole called this morning and said that the project manager had removed him from the study because of his allergy to the cath dye. For those of you who don't know, he breaks out in hives and itches from head to toe. The study doctor had even called in the presciption for Prednisone that will prevent the reaction (we picked it up yesterday). She also said that no exceptions were made but they could not take the chance on the adverse reaction. Bill said right after he got off the phone with her the hospital called and wanted to pre-register him for the procedure. He just told them to check with Nichole and he wouldn't be coming. He did let Nichole know that this was not really good practice. Every time it was at the last minute when things were changed or we knew anything.

But, even though this has been disheartening, we are not giving up. We're going to start searching again for other studies. He was just surfing the net when he found this one, so we'll look for some others. We are going to take off this week-end and get away from everything and just kinda regroup for a few days. Don't know where we're going or for how long but someone, probably Emily will know how to find us and most of you have our cell numbers anyway.

So, until there is some news, hope everyone has a good week-end.

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