Tuesday, September 18, 2012

Biopsy went well yesterday and got the results today. He's at 1A. He's still technically not rejecting the heart but it's not a perfect biopsy like the others have been. Stephanie said they treat this as no rejection and most transplants move back and forth between statuses. The only medicine change made was to take him off of the Prednisone. Also, his A1C for blood sugar was 5.8, which is better than most people so we don't have to keep track of that any more!

His swallow study was perfect with no issues at all. The therapist said that there is no reason to think that he will have any problems in the future, other than what all of us have at times. He does need to take smaller bites and drinks, but doesn't need to have the thickening added to thin liquids.

We went to the LVAD/Transplant luncheon today that was sponsored by the company that made LVAD that Bill had. The surgeon who did  Bill's LVAD implant was the speaker and he showed a clip of an implant that he said was actually one of the people in the room. Of course he didn't name names, but it was really interesting to see. We saw a lot of people we hadn't seen in a while and met a lot of new people.

We did get some really good news yesterday. I was talking to Dr. Yip before the biopsy and we were discussing time lines. We are going to be able to go home in November! BUT, we would have to come back in December for another biopsy, so I think we have decided to wait until December to come home. We would have to come back in February for a biopsy and then again the end of April/first part of May for the 1 year biopsy. We're both pretty excited about finally having an end date, even though it's not a set date yet. But, if the dates of the biopsies hold true to what they have been, we should be home the week before Christmas. We'll know more as the time gets closer. I'm sure we'll also have to check in with a cardiologist when we get there, and we have to find a new one since Bill's retired this year. But, I'm sure they will tell us what we need to know before we go.

All for now. It's almost time to get us something to eat, even though we're both not very hungry. Good thing we're having left-overs tonight!

No comments:

Post a Comment