Saturday, July 28, 2018

Not much news to report this week, just getting back to normal. There were no appointments anywhere for either of us.

Bill is getting used to not having to wear his oxygen all the time, although he forgets to put it on when he gets up for something and I have to remind him. He's finally  off all the antibiotics and steroids. Hoping his blood sugar will start to stabilize and we can dispense with the shots. But, if not, at least we're in a routine with them now.

Our weather changed this week, cooler and a few drops of rain. We are so dry the grass is dying. Rain comes, oh so close, and then bypasses us. The air is so dirty from the farmers in the fields, although all the fields have been burnt now so we don't have to deal with the smoke any more. But, with the weather change, Bill has started coughing again. Johnny the home health nurse heard some crackles again way down in his lungs and I meant to have Emily set up bloodwork for Monday morning but forgot. She won't be in the office this week. She's chaperoning a church youth group trip to Houston for a Fine Arts Competition. But, I can always call and set it up. I just don't know if Amy will come by herself.

I got the results from my esophagram and it is not Zenker's Diverticulum. I have a Shatski's Ring at the bottom of my esophagram that is causing the problem. It could have been there since birth, or it could have been caused by acid reflux. Either way, they are getting clearance from the cardiologist to schedule an endoscopy with dialation and the nurse said that should take care of the problem. This is usually just an out patient procedure and I will have to have a driver and should only have a sore throat for a couple of days. But she said that should solve the problem. I'm still finding different trigger foods. I ate a "pig salad" the other night which is salad greens with chopped pork on top. Salads don't usually bother me, but, instead of the pork which I suspected would be a trigger, it was a bite of tomato. When I was finally able to eat again it took little tiny bites and an hour before I finished. Last night I fixed a pot roast with potatoes and carrots and, again, small bites, chewing very slowly, I was able to eat all of it with no problems. It will be so nice to enjoy food again!

Yesterday was McKenna's 14th birthday and Kiyann's 11th birthday so we went out for our traditional birthday breakfast. Usually we go to Perkins but this time we went to IHOP. We only have a small IHOP Express located in a Love's Truck Plaza so it has a limited menu. But, Kiyann had never been there and the rest of us like it and it's good food, so that's what we did. They through the credit union to get their birthday money (it's what they requested) and then back home.

Kevin came to evaluated Bill for continued physical therapy and he's going to request another 4 weeks. He's still improving but not quite to his goal yet, of being able to be on his treadmill.

That's been our week, just a nice normal week. We don't have any appointments next week either so it should be nice and boring as well. See you then!

Saturday, July 21, 2018

We've have an interesting, but good week!

Saturday evening I looked out the back window and saw one of the kittens limping up to the food bowls. It looked like her/his back leg had been dislocated or broken. I took our extra carrier out and put some food in it trying to entice it in, but it retreated under the house, just far enough that I wasn't going to reach in to try to grab it. Our back neighbor Paul came around his fence on his mower and asked me if I had an injured kitten. When I nodded he said that it had been stuck between 2 boards in his privacy fence and he had to take a board loose to get it out. It made it's way to the house next door with the other kittens and I worried about it all night.

Early Sunday morning Mistie came over and was able to snatch it up and get it in the carrier. She did get bit and scratched a little. We took it to the vet and it was late Monday afternoon before it calmed down enough for it to be xrayed. The leg is not broken, but where it was caught it's being treated as an open wound. They said she has calmed down some and is letting them treat her but she's going to be there for a bit. When she can come home we are going to release her again. Kitty did not like her being in HER house and was hissing. She will probably end up being our outdoor cat.

Wednesday was Bill's appointment with Dr. Burbeck, the pulmonologist and this is the really good part. His O2 saturation sitting with oxygen was 95%, which is what a lot of people maintain, without O2 it was 92%, which, while low, is very acceptable. But, when walking it drops to 87 which is low. His numbers from his Pulmonary Function Test had also improved over February. I haven't pulled all of the tests to compare the numbers, but Dr. Burbeck was really pleased. She said the bronchoscopy was just the thing he needed. So, we can reduce his oxygen flow from 3 liters to 2 liters and while he is sitting, even while eating, he doesn't have to wear his oxygen. He does have to wear it at night and while he's walking, but still only at 2 liters. He was having to turn it to 4 liters when walking. She does want it higher if he should get back to his treadmill which won't be a problem. She didn't hear any crackles or wheezes when she listened to him and wants to see him back in September. This is going to make it much easier to go somewhere, even to a local restaurant. We'll be able to use the smaller tanks more and not have to worry about running out while we're gone.

He's been a lot more active around the house and says he does feel better. A couple of times he forgot to put his oxygen back on before he walked, that will just take some getting used to. I did notice in the night last night that he got up a couple of times and his breathing seemed more labored, but once he took his pjs off, as it felt hot in the bedroom, and he also put extra toilet paper out and had to open a new package. Why he thought it needed done in the middle of the night when it's just the 2 of us here and there was more than 1/2 a roll is beyond me, but who am I to question.

Tammy from physical therapy came yesterday and was very please that he got through all of his exercises at the repeats she wanted with no trouble. He was tired after, but recovered quickly. She comes again next week and then Kevin, the head therapist will be back out to evaluate him to see if he needs extended. We'll also see the nurse for a couple more weeks just to be followed.

One thing that Dr. Burbeck was concerned with was his weight loss. So, I have to push him to eat more. He's done that the last couple of days. A lot of it is empty calories, but he's still eating better for meals now too.

I still don't have any results from my test. I did get an email late last night that they have received the report and I should know something later this week. I'm ready to find out what the problem is. I haven't had any episodes for a few weeks now, but I'm eating things I know won't bother me. I'm tired of casseroles! So, I'm going to cook what I want and just keep trying with small bites and eating very slowly. I ate a turkey cutlet and twice baked potato last night with no problem. So we shall see.

Ryan, my son, has to have his gall bladder removed. Not only did he have his first "attack" this week, he passed his first kidney stone. His dad suffered from kidney stones until he died and everyone in my family, at least all the females, have had gall bladder disease. He sees the surgeon Thursday. I thought that they were doing the surgery Thursday, but it's just the initial appointment with the surgeon.

My nephew's baby boy arrived Tuesday and he's a big one, especially for being about a month early, weighted more that 8 pounds. He is still in the NICU, but improving every day so maybe he'll get to come home soon. He looks just like his daddy!

I think that's all for this week. Maybe we'll have as good a coming week as this one was. Until then, stay cool. These hot days are getting to be a bore!

Saturday, July 14, 2018

We have a culprit! Bill saw the Infectious Disease dr. yesterday, well he saw the nurse practitioner, and we now know what is causing the pneumonia flare-ups...it's the pseudomonas aeruginosa virus. It's one of those that takes a long time to grow, and it was found in his right middle lobe of the lung. We probably still wouldn't know what it was if Dr. Munday hadn't agreed with me that he needed the bronchoscopy.

When I told Beverly I would research this virus to learn more about it, she told me not to get to involved with it because it is a nasty virus with 191 variations and the literature would be scary. She did print out the lab findings for me and it lists the antibiotics that are most effective. It showed 2 strains, 3 and 4, and I don't know anything other than that about them at this time. Strain 4 is resistant to some of the antibiotics, but strain 3 wasn't.

He got his labs done before we had to go to Memphis and Emily emailed them to me. His white count is back down to where it was when he was discharged, and even though it is still high, Beverly was not concerned about it. I guess for someone with Bill's immune system, this is an acceptable number. The maximum suggested count is 10,000 and Bill was at 11,600 yesterday, compared to 11,300 at discharge. He was at 14,500 on Monday (it had gone up again from when he had his labs drawn last Friday) so Connie added Rocephin shots again. 

We did have a big snafu with those and I took the brunt of it. When Em called and told me that she was ordering the shots, her nurse Amy was standing right there with her and I told Em to make sure when they ordered the shots to include the Lidocaine and syringes and to have Amy contact the home health people again to do them. I waited until late Monday afternoon and didn't hear anything from home health, so about 4:30 I hauled Bill and the shots up to the office to get one. Connie saw us  there and wanted to know why we were there and I said to get the shot and I heard her tell Amy to make sure they were set up with home health. Tuesday we still hadn't heard anything so took him back up. Connie told me not to bring him back, she would come to the house herself to give the shot if home health didn't come. I was standing next to Amy when she called them and this was the first they had heard of it, so she hadn't called before! We also found out that our nurse, Ricky, was at the emergency room with gall stones and he had emergency surgery Wednesday. But, I digress. I was chewed out again before we left for bringing Bill up for the shot and the more I thought about it I thought "what does she want, she wants him to have the shot but if they don't show up and I don't get them called in time no-one will be there to come and give it, or do I take him out to get the shot". Anyway, later that evening I got a call from the director of home health and he said they had just gotten the orders for the shots and he would be here the next morning himself. That's when I knew for sure that Amy hadn't called them before that afternoon. It wouldn't have done any good for me to have called because they needed the order from the dr.

Johnny came out Wednesday and Thursday and is a really nice guy. He even worked on Bill's horrendous toenails some. I had cut them as much as I could and he sat on the floor with a nail file and worked on them some. He said that when they were still the health department, they would do foot care for patients, but since this group took over they don't allow it. He said he could have sat there all day working on his feet. I've got to get an appointment with a podiatrist to get them cared for before long.

Anyway, back to Memphis. Beverly told us that if he starts feeling bad again to call them and they'll get him in and give him an infusion of antibiotics, or send him home with IV antibiotics. She listened to him and said that he is still a little crackly, but not like he was in the hospital, so he is on the mend from this round. She also said that this bacteria is one that likes to attack people with lung problems, compromised immune systems, and in the hospital. She was surprised that the combination of Levaquain, Doxycycline and Rocephin worked so well in combination, but as long as they work, that's what we'll do. I have to look up the names of the antibiotics on the paper to see what the name brand is for them so I'll know just what they are.

Stephanie called earlier in the week to check on him since they had the notes from the ER doctor who had called to consult, and I think Dr. Shirwanny had also consulted. She just said if Bill wanted to get set up with their lung doctors to let her know. So far, he doesn't want to. I think it's just because he's tired of Drs. right now and the trip does wear him out.

I have noticed that when he's at home, he isn't having any trouble walking from room to room, and when his O2 sats are checked he's in the high 90s. But, to go to the Dr. he can't walk any distance, even slowly, and he starts laboring to breathe. I don't know if it's just because he's out of his normal, or if he's just putting on like his mother was inclined to do. We used the wheelchair yesterday since I didn't know the logistics of the office and he did fine. So, something to watch for.

I managed to get my ID redone Monday. The girl couldn't have been nicer and I didn't need Bill's ID with me since he had signed the paperwork electronically. So that's out of the way for another 4 years.

I had my esophagram Thursday and I still don't have any results yet. It went well and I was home in 30 minutes. I had to drink some fizzy stuff and they told me that it would make me burp, but not to burp. Then there was a really thick "milkshake" that I had to hold in my mouth until the dr. told me to swallow, and the same with a thinner milk like drink. Finally I had to take a pill and it felt like it got stuck. When I showed the dr. where it was hurting he said the pill was actually farther down than that. All the time I was swallowing, he was taking x-rays up and down my esophagus. The table would go from laying flat to standing me up WHILE I WAS ON IT! It was kind of like being on a carnival ride! Hopefully I'll hear something from Dr. Raj early in the week.

Bill sees Dr. Burbeck next Wednesday instead of waiting until his appointment in August, and then we are pretty much done with Drs. as far as I know until my echo in August. That will be nice.

That's been our week. We'll still see home health for physical therapy and a nurse once a week just to eyeball Bill to make sure he is still progressing. Until next week...


Saturday, July 7, 2018

It would have been nice to spend the rest of the week quietly, but it wasn't to be. Even though Wednesday was a holiday, the home health nurse came by to check Bill out and get him going in the system again. It got rather noisy in the evening and even though the neighbors picked up their trash, they didn't pick it up from our yard, and there is bottle rocket debris all over it.

Thursday was my appointment back in Memphis at the gastro dr. I really liked him and instead of going straight for the endoscopy, he's going to try an esophagram, which is like a barium swallow study. Surprisingly it can be done at our hospital so I don't have to go back to Memphis. It's going to be Thursday morning. Bill's regular pulmonologist, Dr. Burbeck called in the morning and wanted to see him before his regular appointment in August. So, he has an appointment with her on the 18th. While I was on my way home from Memphis, Dr. Threlkeld's office called. This is the Infectious Disease doctor. They want to see Bill next Friday to see if the antibiotic is working.  Then, the home health physical therapist came by that evening to re-evaluate Bill. He said he has lost some of the progress that had been made, but that's to be expected.

Yesterday we both had appointments with our regular doctor. Mine went fine and was basically a med check. Bill's white count has gone back up from 11 to 13. She added an additional antibiotic and said he still sounds coarse in the bottom of his lungs. She also added nebulizer treatments at least twice a day and wants him to use his spirometer during commercials to keep his lungs expanding, or we're going to end up back where we were. Amy, the nurse, is going to come out Monday morning to draw labs so that he doesn't have to get out in the heat.

After we left the dr. we headed to Dyersburg. I still haven't renewed my ID card, and we couldn't do it yesterday either. The ID office was closed. So, Monday morning, as early as possible, I'm going back to Dyersburg to get it done. It expires Tuesday and it's a difficult process to get it renewed then. Believe me, I've done this and know how tough it is.

We are both exhausted, although I feel more rested this morning. Bill must too since he was up at 6:30. Guess that's what happens when you don't even make it until 9 before going to bed! Hopefully I'll feel like getting something done around here. The house is a wreck and needs some serious attention. Plus the laundry is overflowing, but we still have clean underwear so it's not panic mode quite yet! Plus, groceries need bought and my car has a recall that needs attended to.

Our daughter-in-law is having surgery Monday to repair a hernia. She is also having an MRI and EEG. They believe that her brain tumor is either growing back or she has an aneurism. She's started having small seizures again, even on her medication.

So, that's been our week. I told Bill that as much as needs done, all I want to do is sit and rest. But I've sat so much that last night my entire body was aching so I know I need to be moving more. The next 2 weeks will have more news from drs. Where has our "normal" life gone? Oh for those days of nothing happening!



Tuesday, July 3, 2018

The bronchoscopy was a success and....we are home! Dr. Fox said that there was a lot of "snot" and mucus plugs in his lungs and he flushed them all out. Some of it has be sent for cultures, but he said that Bill should be breathing much better. I believe he is, he's not coughing as much as he was, although he is coughing some from the procedure. He also does not have IV meds for home, but the antibiotic he is on is one that conflicts with his other meds and causes abnormal heart rhythms. When I asked Dr. Threlkeld about it, he said the only other choice would be Cipro and it is worse than the Levaquain. He would really have liked to give Zithromycin, but Bill is allergic to that. He just said to have an EKG Friday when he goes to our regular dr.

We got home about 6:30 after picking up meds and going through Zaxby's drive through for dinner. Cat was very glad to see us and she's on Bill's lap now while he's watching the original King Kong.

We have no plans for tomorrow, which is good because I am exhausted. I left for the hospital at a little after 5 this morning. Bill is still very weak when he's walking. He could barely make it up the steps into the house without me holding on to him. He said he walked with physical therapy yesterday after I left, but who knows. I'll have him walk around the house a little tomorrow and maybe do some of his exercises that he does sitting.

That's it for tonight. Mainly just wanted to let you know the bronchoscopy was a good decision and that we are home. Have a happy 4th!

Monday, July 2, 2018

Today was a rather frustrating day...at least for me. Dr. Shirwanny, the cardiologist, wanted Bill up and walking. I told him that physical therapy had come in yesterday and said that he would be scheduled for therapy. Dr. Threlkeld, the infectious disease dr. said that a bronchoscopy was still on the table because everything they were testing for had come back negative. A pulmonary resident, whose name I can't remember, listened to Bill and even though he said he was better, she asked if he was always out of breath when he talked. And the answer to that was no. He became winded just sitting forward in the bed. She agreed that a bronchoscopy was probably the best thing to find out just what was cooking in there.
So, as of lunch time, all of the specialists were agreeing that the test needed done and that he needed some strengthening and walking done.

I ran to the cafeteria and was gone for maybe all of 15 minutes. I missed "a young dr" according to Bill who said he could go home! After lunch the case manager came in and asked some general discharge to home questions and wanted to know what home health agency we wanted to use. When Bill's nurse came in later to change antibiotics, he said he had seen the order to discharge to home with IV antibiotics. He said probably the one they would order would be covered by Medicare. I was so upset and angry about this that I couldn't have talked to anyone without crying! I did later deduce that the dr. I missed was the hospitalist who was thrilled that his white count was down to 14, which is still too high even for having an infection and being on steroids.

Bill finally decided about 2 that he wanted to sit in his chair. Up until this time he hadn't left his bed and since they have him as a fall risk and have his bed alarmed he couldn't just get up and move. Shortly after that, Dr. Munday, the pulmonologist came in and at first he said that if Bill felt better and that he didn't sound really bad he could leave. I told him that this was the 3rd hospitalization in 9 months and then he said that they really needed to find out what was causing the recurring flare-ups. So, a bronchoscopy is scheduled for 7:30 tomorrow morning. I'm leaving really early to get there by 7. I don't know if they will still want to discharge him later in the day, or if they will keep him another day. I suppose it will also depend somewhat on what they flush out of the lungs.

So, we may finally get some definitive answers. I was going to suggest to Bill, before the procedure was scheduled, that we just call Mayo and request an appointment with their lung doctors. 

I'm also not really happy with his care. He was admitted late Friday evening. He has not had a clean gown, or bed linens, or even his bed straightened unless it was done after I left. And since he couldn't get out of bed, he couldn't go in to the bathroom to clean up, yet he wasn't given a bedside bath either. I could understand it over the week-end because apparently the hospital doesn't have PCA's working on the week-ends now. But, you would think that Monday would have been jumping with getting things done. So, when the survey comes after he's discharged, that will be brought to their attention. And yes, I know that I could, and should, have contacted the case manager about it today. Maybe tomorrow while he's gone for the bronchoscopy they will redo his bed and hopefully put a clean gown on him before. But, who knows. 

I'm not planning on taking the computer with me tomorrow , which isn't fair to everyone who has kept up with us through here, but it's just something else to lug around. If there are some definite answers, family will get phone calls or texts. If it's something really major, I can try to update on my tablet. It's harder to do, but I'll give it a try. Otherwise I'll update when I/we get home.

All for tonight. I've still got to gather some things up tonight so I don't have to do it in the morning. So, at about 7:30 central time tomorrow morning (those in other time zones can figure out the difference) think good thoughts and say a little prayer for us, if you're the praying type. The lightning is flashing and the thunder is rolling and I don't think a drop of rain is falling, so I'll say goodnight!


Posting later than the last couple of days, but I came to the hospital earlier this morning. I wanted to beat the worst of the traffic, and I thought I would get a better parking place. Well, I did beat most of the traffic, but not an ideal parking spot, although it really isn't that bad. Anyway, on to the update...

Bill continues to improve, although not as much as the pulmonologist and infectious disease doctors are wanting. As far as the hospitalist is concerned he can go home today, but the others, including cardiology, are saying not so fast. His white count yesterday had only gone down a little, from 17 to 16.4 (these are thousands). The hospitalist said that even though that is still rather high it can be attributed to the infection and steroids, it is still high compared to what it usually is. His usually stays around 9-11.

All of the tests and cultures they have done have come back negative. So, pulmonology and infectious disease are considering doing a bronchoscopy to remove some of the gunk in this lungs an see just what is growing. I don't know if they are planning on rinsing his lungs to clear it all out or just testing. The pulmonologist said that the emphysema will make this a little more difficult, and dangerous for him, but I think they are of the mind that since this is the 3rd hospitalization and 4th episode for him, something has to be done, or he'll just keep coming back. So, I wasn't surprised when it was suggested. 

He is still getting very winded when he moves and they had to increase his oxygen flow a little. They were going to increase it again this morning because his sat was only 90, but I told the nurse that's where it usually stays and the best way to get a good reading was to stick a thermometer in his mouth because then he has to breath through his nose. They also don't want to get his oxygen flow too high because that pushes all of the carbon dioxide from the COPD to the bottom of the lung which makes it harder for the lungs to inflate and use the oxygen.

He was evaluated yesterday by physical therapy and is going to have some therapy while he is here. It's mainly going to be a continuation of what he was doing at home. They may have him walk some in the room, but I'm not exactly sure what it will be. She just said that he would be put on the schedule.

I've got to spend the morning making some business phone calls concerning appointments and such. Life does go on and these aren't things that someone else could handle. So, my cell phone will get a work out today.

When I was sitting in the recliner here in the room Saturday I got a horrible cramp in my right foot that went all the way up the back of my leg to my knee. Not even trying to walk it out or flex it helped to stop it, just had to do it on its own. Well, I noticed when I got home yesterday that my right foot was swollen, but mainly just the foot and not the ankle so much. But, my calf still aches and there is a small bruise behind my knee. I don't remember if I hit my leg, which is entirely possible. My heart dr. has said to watch for swelling since that is a side effect of one of my blood pressure meds. My left foot had swollen while we were in Illinois for Gene's funeral and it went down by morning. I figured it was from all the driving the day before and then sitting in so many chairs where my legs were dangling. That could be all that this is too since I'm driving 3 hours a day and then sitting on uncomfortable furniture, but, it didn't go down all the way through the night. So, a phone call to Dr. Morrow's nurse is on the agenda for today.

I think you're caught up now. We haven't seen any drs. yet this morning. I know pulmonology said they usually try to round by noon, but that isn't always the case. That's one reason I wanted to come in early, to catch drs. They usually start earlier during the week unlike the week-ends. So, once again, when we know something, I'll get this updated again. Keep the prayers and good thoughts coming, they are definitely working!

Sunday, July 1, 2018

Bill has improved. His white count yesterday was 17,000 which was a considerable drop. He's still very short of breath, even when he sits up for them to listen to him. He says he isn't, but he says that as he just lays in his bed!

We saw the hospitalist, Dr. Zada, and he is the one who will make the decision on discharge. We saw the nurse practitioner and a transplant cardiologist and they are just monitoring his med levels. His prograf level is too high. That's one of his anti-rejection meds and the range for the amount in his blood is between 5 and 15. His was at 10 yesterday which is a little high, so they were going to hold his evening dose. In May at Mayo it was 7.7 which is just about ideal. So they thought that skipping the dose would help get him evened out, without actually changing the dosage. Of course that could still happen and that drug has been tweaked several times. We also saw the nurse practitioner and an infectious disease dr. This one is a brother to the one we saw last time. He again said that so far everything had come back negative on all of the cultures. Bill was able to give them a sputum sample this time so maybe that will show what is brewing. Dr. Threlkeld, who is actually the brother of the one we saw in November, has suggested that if the cultures still don't show anything, that a bronchoscopy be done by the pulmonologists. That's where a scope is inserted into the lungs to look around and take samples if necessary. That had not been mentioned before by any drs., only my sister. I don't think Bill heard him say it since the dr. was facing me, but it does make sense. He said on the CT that there were several areas that have shown up.

They are giving him 3 different IV antibiotics, but no other IV fluids now. He was a little dehydrated when he got to the hospital, but he stays that way most of the time. But, his kidney function has been a little better so they stopped the other fluids.

He called me yesterday evening after I got home, I left after he had eaten his dinner, and he was very belligerent. Apparently he got out of bed and went to the bathroom without calling for the nurse and they chided him for it. He also walked around the bed and put his slippers on, even though he has the nonskid socks on. He and I had talked about it yesterday, that if he needed to use the bathroom he just needed to use the urinal unless he needed to have a bowel movement and then he would call for the nurse. They did lengthen his tubing yesterday for him to go into the bathroom, but we also have to move his IV pole if his meds are running and we have about the wobbliest pole in the place. He was also so short of breath that he was not listening about trying to control his breathing and just saying the oxygen was turned off. So, he said he was going to have to have a talk with them about getting up that he wasn't going to stay in that bed until he died. I told him if he wanted to sit in the chair to call the nurse and tell them he'd like to sit in the chair and then would help him. He was also worried about the cord for his cellphone. If he unplugs his phone the cord falls to the floor no matter how I try to anchor it. I told him his phone was fully charged, even after calling me and that it would be fine during the night. I also told him to nicely ask the nurse to pick it up for him the next time they came into the room. I just thought that this is reminiscent of how he acted at times in skilled nursing. Maybe too many steroids again.

While he is improving, there has been no talk of discharge yet, although Bill wants to come home today. I think he'll be there until tomorrow or Tuesday at the earliest. But, it all hinges on how he improves.

I came home after he ate dinner last night and got home about 7. The cat was very happy to see me and after she ate she roamed the house meowing looking for Bill. She did play for awhile and then wanted to go to bed. She started out where she usually does, between my knees, but I turned over once and she was on Bill's side, just below his pillow and she stayed there all night.

I told Bill that I would be back about 9 this morning. That seemed to be a good time yesterday. I hadn't been there long before the drs. started coming in so I didn't miss anyone. They know that he can't answer any really hard questions or ones that pertaining to his transplant.

So, that's the latest update. Again, no hives, but I did get a terrible cramp in my right leg that started at my toes and went up behind my knee. I think it was due to the chair. I moved to it and it is not made for short people. I could hardly reach the lever to recline it (the arm of the chair was in my armpit and I couldn't get the footrest up far enough. So I'll figure something else out today. I'm going to take Bill's wheelchair pillow today so that if he sits in the chair he'll be a little more comfortable. The chair and couch are both rock hard!

Depending on how tired I am tonight, this may get updated tonight, or again, early in the morning like today. That seems easier for me, even though I don't really feel rested I know I slept. So, just keep checking. And, there will be mini updates on facebook. Some of you will be able to see them if we are facebook friends, and if we aren't friends but you follow the blog, send me a friend request with a message that you follow it and I'll add you. Happy July!