Folks have been wondering why I haven't posted anything lately and the answer is...we don't know anything yet. We do know that the tests from Memphis were sent to Houston on Friday but as of yesterday Nichole had not received them. Maybe today. I think that they probably have reviewed the tests they did and will be able to make a decision as soon as they see the last cath, but that is just my thinking. However, since we do know the tests were sent, we should hear something in the next few days.
It's a cool rainy morning. I just wish I had a covered porch to sit on with my coffee and watch it rain. Today it seems to be very peaceful, just rain.
Until the next post, have a great day!
Tuesday, July 21, 2009
Tuesday, July 14, 2009
We are done with doctors until September! That is unless Nichole calls and tells us that Bill has been enrolled in the study. She did call today to see if we have let the transplant team know that they needed the last heart cath and she said that everything else looks really good.
Spent about a minute or so with Dr. Garrett. Everything was ok with him and he said he'll see us in 3 months. So, no appointments until Sept.1, again on the 8th and then Garrett in October and another heart cath done then. He will have to have one every 6 months. Only lab work in August and that can be done in Blytheville.
Hopefully now we can rest from all of our travels before we pack up and go somewhere else. We still need to make a trip to Illinois and Bill has talked about going to Branson. He's never been and wants to see it. Of course, all of that will depend on hearing from Houston. I'll keep everyone posted. You will know just as soon as we know.
Spent about a minute or so with Dr. Garrett. Everything was ok with him and he said he'll see us in 3 months. So, no appointments until Sept.1, again on the 8th and then Garrett in October and another heart cath done then. He will have to have one every 6 months. Only lab work in August and that can be done in Blytheville.
Hopefully now we can rest from all of our travels before we pack up and go somewhere else. We still need to make a trip to Illinois and Bill has talked about going to Branson. He's never been and wants to see it. Of course, all of that will depend on hearing from Houston. I'll keep everyone posted. You will know just as soon as we know.
Sunday, July 12, 2009
We are finally home! Got in about 2 this afternoon. Bill is feeling much better today than yesterday. He ate real food last night, although he had too much and had to take some more medicine. But he ate a light breakfast today and let me drive home. It's a good thing we both like to drive. I think, too, he also knows now that it something would happen in Houston, I can get us home with no problem!
We're planning on taking it easy tonight. I have to work tomorrow and he's got some business to take care of before we head to Memphis Tuesday to see Dr. Garrett. And then we should hear something from Nichole about the test results this week.
This was a learning experience for us. We now know what supplies we need to take, and what we don't need to take, that can be purchased after we get there. When the description says basic cooking utensils and dishes it means just that, 1 skillet, 1 pan, 3 plates, 2 glasses, 2 forks, 1 sharp knife, 3 spoons, 4 cups, 3 bowls and a can opener that broke the only time I tried to use it. No dishwashing liquid, but a 1 time packet of dishwasher detergent. Of course there weren't enough dishes to justify using a full size dishwasher! But like I said, it was a learning experience. If we are to go back we'll be better prepared.
There probably won't be a post tomorrow, but I'll let you know about the visit to Dr. Garrett.
Thanks for all the comments and good wishes. They helped keep me going all week.
We're planning on taking it easy tonight. I have to work tomorrow and he's got some business to take care of before we head to Memphis Tuesday to see Dr. Garrett. And then we should hear something from Nichole about the test results this week.
This was a learning experience for us. We now know what supplies we need to take, and what we don't need to take, that can be purchased after we get there. When the description says basic cooking utensils and dishes it means just that, 1 skillet, 1 pan, 3 plates, 2 glasses, 2 forks, 1 sharp knife, 3 spoons, 4 cups, 3 bowls and a can opener that broke the only time I tried to use it. No dishwashing liquid, but a 1 time packet of dishwasher detergent. Of course there weren't enough dishes to justify using a full size dishwasher! But like I said, it was a learning experience. If we are to go back we'll be better prepared.
There probably won't be a post tomorrow, but I'll let you know about the visit to Dr. Garrett.
Thanks for all the comments and good wishes. They helped keep me going all week.
Saturday, July 11, 2009
Friday, July 10, 2009
After sleeping for most of 24 hours, Bill is much better today. He had to have some of the labwork redone today and found out that the tech who took his blood Tues is out sick! Kinda makes you wonder who infected who!
The MUGA test has been done and we are free to leave any time we want. Since we are both tired we decided to wait until tomorrow morning to leave. We're going to stop in Texarkana again and be in sometime Sunday.
We won't have any results from the tests until sometime next week. Hopefully he has passed everything and will be put into the study. And if he's included, then we have to hope that he will get the stem cells. It's not a double blind study but he won't know if he gets the cells or not, only the doctor will know.
As of now we're going to pack things up, get a good dinner and get to bed early. Hopefully we'll sleep better than the last 2 nights and be rested to travel tomorrow. I'm just sorry we didn't get to do any sightseeing this time. Oh well, there will be other times.
The MUGA test has been done and we are free to leave any time we want. Since we are both tired we decided to wait until tomorrow morning to leave. We're going to stop in Texarkana again and be in sometime Sunday.
We won't have any results from the tests until sometime next week. Hopefully he has passed everything and will be put into the study. And if he's included, then we have to hope that he will get the stem cells. It's not a double blind study but he won't know if he gets the cells or not, only the doctor will know.
As of now we're going to pack things up, get a good dinner and get to bed early. Hopefully we'll sleep better than the last 2 nights and be rested to travel tomorrow. I'm just sorry we didn't get to do any sightseeing this time. Oh well, there will be other times.
Thursday, July 9, 2009
He's a little better this evening. He has slept most of the day and has only managed to eat a little broth and a couple of crackers. I ventured out to the Kroger and got some more Tylenol and Imodium. He's so cold that he had to put on a jacket to sit and eat and could barely hold the spoon. We've turned the air off in the room and so far it hasn't gotten too stuffy. We're both beginning to think it's a bug of some kind and not a reaction to the drugs.
He's gotten back into bed now and piled the covers on. Doesn't even want the TV on. Just wants to sleep.
I still have to clean the kitchen up since he's decided not to eat anymore, and he can't eat anything after midnight if they are going to do the test tomorrow, so I'd better get going. This place is so small it can't stay cluttered for too long.
He's gotten back into bed now and piled the covers on. Doesn't even want the TV on. Just wants to sleep.
I still have to clean the kitchen up since he's decided not to eat anymore, and he can't eat anything after midnight if they are going to do the test tomorrow, so I'd better get going. This place is so small it can't stay cluttered for too long.
Well, we did not have a good night. Bill has apparently had a reaction to the drug they used for the stress test. He started with diarhea about 8:30 last night and started vomiting around 5:30 this morning. He's still in bed, and sleeping, which for him is not normal. He said he has a terrible headache so I ventured out to a little corner grocery store we found last night to get some Tylenol and soup. He's taken the Tylenol and kept it down and finally took his morning meds while I was gone and kept them down so maybe it's finally out of his system.
We discovered last night that things close early here. We decided against room service and went to Luby's Cafeteria only to discover it closes at 8! And after driving around the only other place we could find was a McDonald's. Since we had McDs. for lunch we didn't want to go there again. That's when we found the little grocery store.
I've spent a lot of time online today finding places. There's a Kroger not too far and a Target not too far in the opposite direction from Kroger. Mayber later today I'll check them out. It will depend on how Bill feels. I don't want to leave him alone for long.
Hopefully later today I'll be able to post that he is better. I don't think they would do the test tomorrow if he is sick. They are using a different isotope tomorrow, but if he's already weak, who knows how he would react.
We discovered last night that things close early here. We decided against room service and went to Luby's Cafeteria only to discover it closes at 8! And after driving around the only other place we could find was a McDonald's. Since we had McDs. for lunch we didn't want to go there again. That's when we found the little grocery store.
I've spent a lot of time online today finding places. There's a Kroger not too far and a Target not too far in the opposite direction from Kroger. Mayber later today I'll check them out. It will depend on how Bill feels. I don't want to leave him alone for long.
Hopefully later today I'll be able to post that he is better. I don't think they would do the test tomorrow if he is sick. They are using a different isotope tomorrow, but if he's already weak, who knows how he would react.
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