Good Sunday morning! It looks to be a lovely day here. It's a little cool right now but the sun is shining and no clouds in the sky.
We've had a good week after our trip. We went shopping for a new washer and dryer. Haven't purchased it yet, but I think I've decided which one I want. Need to get the old set moved out before the new gets delivered. The old ones are going to Ryan's. We also got some replacement parts for the grill and a few other things for the patio. I'm hoping we can spend some time out there this summer and enjoy it. We're planning on grilling some steaks for Memorial Day, just the 2 of us I think.
The only thing that has really happened this week is LIFE, the little every day things. There have been no major problems or developments. I did take McKenna to the eye doctor early Thursday morning to get her glasses fixed. She talked the entire drive there and back. I love the conversations we have. You never know what she's going to come up with, such as needing to go back to Florida to the beach, but this time with a beach chair since she has a new bikini!
I hope everyone has a great holiday week-end. Please remember the reason for the holiday, not just as the start of summer. I sometimes wonder if the origin of the holiday is taught anymore. As I was looking at my great-uncles grave, and listening to mom explain to Bill who he was, I realized that he was not 18 when he was killed in World War I, but 17. So young, yet wanted to fight for his country so badly that he lied about his age to enlist. So, let's take the day to remember our fallen ones, before our baseball games and bbqs. OK, off my soapbox! Until next week....
Sunday, May 26, 2013
Tuesday, May 21, 2013
Sorry for no post Saturday. We were visiting my mother in Illinois. We had a great visit and I got to meet my great-nephew who is 8 months old. He's a happy fella, especially being around people he hadn't seen before, in addition to a niece and nephew and brother and sister.
The weather was perfect for the entire visit. Bill did really well for the entire trip, although he did get tired. We went to the family cemeteries to place flower for Memorial Day with Mom, and between her and Bill walking on bumpy, unsteady land and leaning over driving a screwdriver in the ground to dig a hole, I was a nervous wreck! I had visions of each of them overbalancing and falling on their heads, or twisting an ankle and falling and breaking a hip!
Our travel days were not too bad, some rain and wind, but lots of construction, especially in the bigger city areas. We had considered going home through the country to by-pass those areas, but the weather was supposed to be bad today so decided to stay in more populated areas. As we got off the interstate, I got a message that a tornado watch had been issued and almost immediately a severe thunderstorm warning. We were able to get the car unloaded before the storm reached us. It has thundered all evening now and there is supposed to be another wave of storms coming in.
We have family in the tornado areas of Oklahoma. The Shawnee tornado came within 1/2 mile of one daughter's house. They lost some trees, a fence and an out-building, but the last we heard the house was ok. Another daughter lives nearby and I don't think they have had any damage. She and her husband are in the National Guard and I know her husband was activated. Since Aimee works in supply, I'm sure she has been too. Please keep all of the victims in your prayers, not just the ones in Moore.
All for this update. We're probably going to bed early tonight, if the storms hold off! If not, it could be a very long night!
The weather was perfect for the entire visit. Bill did really well for the entire trip, although he did get tired. We went to the family cemeteries to place flower for Memorial Day with Mom, and between her and Bill walking on bumpy, unsteady land and leaning over driving a screwdriver in the ground to dig a hole, I was a nervous wreck! I had visions of each of them overbalancing and falling on their heads, or twisting an ankle and falling and breaking a hip!
Our travel days were not too bad, some rain and wind, but lots of construction, especially in the bigger city areas. We had considered going home through the country to by-pass those areas, but the weather was supposed to be bad today so decided to stay in more populated areas. As we got off the interstate, I got a message that a tornado watch had been issued and almost immediately a severe thunderstorm warning. We were able to get the car unloaded before the storm reached us. It has thundered all evening now and there is supposed to be another wave of storms coming in.
We have family in the tornado areas of Oklahoma. The Shawnee tornado came within 1/2 mile of one daughter's house. They lost some trees, a fence and an out-building, but the last we heard the house was ok. Another daughter lives nearby and I don't think they have had any damage. She and her husband are in the National Guard and I know her husband was activated. Since Aimee works in supply, I'm sure she has been too. Please keep all of the victims in your prayers, not just the ones in Moore.
All for this update. We're probably going to bed early tonight, if the storms hold off! If not, it could be a very long night!
Saturday, May 11, 2013
We are home! We got home about 3 yesterday afternoon. Had nice travelling weather until an hour from home and then it rained so hard I had to pull off the road. We were both pretty tired and went to bed early, but we apparently both slept fairly well and didn't wake up too tired.
Bill was plagued by leg cramps again in the night. Stephanie and Dr. Hosenpud both said that this is probably a side affect of the Prograf. He walked it out and it seems to be fine now. He's been to Ron's to check on his building project. And, I've been to Walmart to pick up a few things. We aren't planning on anything else today, just to take it easy.
I'll go back to posting once a week now, and if things get too mundane, may be less frequent than that. And, if things pick up, or if something happens that I think you will want to know, I'll post more than once a week. Even if you only check once a week, you can always go back and catch up!
To all my followers who are mothers, Happy Mother's Day tomorrow! You are already blessed to have children and I hope you are able to at least hear from them tomorrow! I know I'll be calling mine!
Bill was plagued by leg cramps again in the night. Stephanie and Dr. Hosenpud both said that this is probably a side affect of the Prograf. He walked it out and it seems to be fine now. He's been to Ron's to check on his building project. And, I've been to Walmart to pick up a few things. We aren't planning on anything else today, just to take it easy.
I'll go back to posting once a week now, and if things get too mundane, may be less frequent than that. And, if things pick up, or if something happens that I think you will want to know, I'll post more than once a week. Even if you only check once a week, you can always go back and catch up!
To all my followers who are mothers, Happy Mother's Day tomorrow! You are already blessed to have children and I hope you are able to at least hear from them tomorrow! I know I'll be calling mine!
Thursday, May 9, 2013
Just a short post tonight. We made it to our first stop about 3 this afternoon. We both slept really well last night and left the hotel about 9 this morning. We didn't get to Bob Evans but hit Dennys instead and were on the road at exactly 10. The weather was clear, the traffic was light, and it was a pleasant day to be on the road.
Stephanie called with the results and again, no rejection! All of his arteries were clear and there are no med changes except for adding the Fosomax. We don't have to go back for 3 months. We don't have any dates yet but they will send an itinerary.
We took the bandages off the groin incisions tonight and the sites look really good except for some bruising. But, those will go away! Other than that, no ill effects from the procedure. The cocktail of drugs he got kept him from reacting to the dye. It would have been a very uncomfortable ride for him if he hadn't had it.
We'll get home sometime tomorrow afternoon, depending on how early we get on the road in the morning. My preference is to leave early and have breakfast while rush hour in Montgomery ends, but who knows. We'll just have to wait and see.
Stephanie called with the results and again, no rejection! All of his arteries were clear and there are no med changes except for adding the Fosomax. We don't have to go back for 3 months. We don't have any dates yet but they will send an itinerary.
We took the bandages off the groin incisions tonight and the sites look really good except for some bruising. But, those will go away! Other than that, no ill effects from the procedure. The cocktail of drugs he got kept him from reacting to the dye. It would have been a very uncomfortable ride for him if he hadn't had it.
We'll get home sometime tomorrow afternoon, depending on how early we get on the road in the morning. My preference is to leave early and have breakfast while rush hour in Montgomery ends, but who knows. We'll just have to wait and see.
Wednesday, May 8, 2013
What an exhausting day! But, it could have been worse. Just as they were getting ready to take Bill from the holding area I noticed a huge swollen area at his IV site. The vein had occluded and the fluid was just sitting there. So, an emergency new IV was placed in the other arm and hot packs were put on the original arm to move the fluid around.
Dr. Hosenpud said that the cath went well. He did say that his arterial pressures were up but he expected that due to the long recovery. He also said the heart was rather stiff but the output was good. I've tried to access his records to get a little more info, but they haven't been updated yet. When I get more I'll let you know.
They were unable to use his femoral artery because of too much scar tissue so they had to use the vein on the left side. This led to small incisions on both sides. Bill, being the stubborn person that he is, refused to keep his head on the pillow and the femoral site started bleeding. After 15 minutes of pressure it had finally stopped and a special "safeguard" was put on. This is an additional seal that is placed on the site and then pumped full of air to put additional pressure on the site. They also put a sheet over his forehead and tucked it under the mattress to remind him not to move his head. This increased his rest time. So instead of being discharged at 1:30 we didn't leave until almost 4. And, since we had left for the hospital at 6:15 this was a very long day!
As far as we know, we are able to leave tomorrow so I'm going to pack up tonight. We travelled as lightly as we could so it won't take long. And, if Stephanie calls to tell us that his biopsy shows some rejection that we need to come back and attend to, we will turn around. But, I don't anticipate that happening.
We've had dinner and we're waiting until it gets dark. We are both exhausted and it will feel good not to set the alarm in the morning. My internal alarm will get me up in time to give Bill his meds. We're going to go to Bob Evans for breakfast and then hit the road after rush hour. (Sorry you won't be with us, Mom). We'll go as far as Ozark Alabama tomorrow and the rest of the way on Friday. We are both ready to go home!
Dr. Hosenpud said that the cath went well. He did say that his arterial pressures were up but he expected that due to the long recovery. He also said the heart was rather stiff but the output was good. I've tried to access his records to get a little more info, but they haven't been updated yet. When I get more I'll let you know.
They were unable to use his femoral artery because of too much scar tissue so they had to use the vein on the left side. This led to small incisions on both sides. Bill, being the stubborn person that he is, refused to keep his head on the pillow and the femoral site started bleeding. After 15 minutes of pressure it had finally stopped and a special "safeguard" was put on. This is an additional seal that is placed on the site and then pumped full of air to put additional pressure on the site. They also put a sheet over his forehead and tucked it under the mattress to remind him not to move his head. This increased his rest time. So instead of being discharged at 1:30 we didn't leave until almost 4. And, since we had left for the hospital at 6:15 this was a very long day!
As far as we know, we are able to leave tomorrow so I'm going to pack up tonight. We travelled as lightly as we could so it won't take long. And, if Stephanie calls to tell us that his biopsy shows some rejection that we need to come back and attend to, we will turn around. But, I don't anticipate that happening.
We've had dinner and we're waiting until it gets dark. We are both exhausted and it will feel good not to set the alarm in the morning. My internal alarm will get me up in time to give Bill his meds. We're going to go to Bob Evans for breakfast and then hit the road after rush hour. (Sorry you won't be with us, Mom). We'll go as far as Ozark Alabama tomorrow and the rest of the way on Friday. We are both ready to go home!
Tuesday, May 7, 2013
Day 2 down. Although it was long, it was easier than yesterday. All "talking" appointments. The most invasive thing was blood pressure and listening to the heart. We saw lots of friends on the nursing staff, housekeepers and other staff members. Stephanie told us she had been hearing "Haven sightings" all day!
Dr. Hosenpud was very pleased at how Bill was doing and told him to increase his exercise. He did admit that he was very concerned about his survival after the transplant, but of course he wouldn't have admitted that last year unless there was no hope at all.
The nurses introduced him to a patient waiting for transplant as the miracle man. The patient said she knew there was something special about him when she saw his smile!
The only glitch in the day was the news that he has developed some osteoporosis in his right hip. But, he's going to be started on Fosomax to help that. This is basically a side effect of one of his anti-rejection meds. It could also be because of age, so with those two factors it's understandable.
The heart cath is tomorrow and he will only have to lay flat for 2 hours instead of the 8 Memphis does. Since Bill is allergic to the cath dye I have to premedicate him with some Prednisone, Benadryl and Zantac. I have everything except for the Zantac so will need to go pick some up. Stephanie also said we could actually head home tomorrow if we wanted. But, since we have the room for tomorrow night and will have to be up extremely early tomorrow, we're going to wait until Thursday as originally planned. And, if for some reason we need to be here after we've headed for home, we'll turn around and head back.
The weather was gorgeous today, pleasant temps and sunny for the most part. A little wind kicked up this afternoon that had a little chill to it, but still a good day.
After we pick up the Zantac and something to eat, we'll be in for the night, unless we can see Abner and Faith. We're still playing that by ear. With me not feeling well yesterday and Faith not feeling well Sunday, we still haven't managed to get together.
Another update after the heart cath tomorrow.
Dr. Hosenpud was very pleased at how Bill was doing and told him to increase his exercise. He did admit that he was very concerned about his survival after the transplant, but of course he wouldn't have admitted that last year unless there was no hope at all.
The nurses introduced him to a patient waiting for transplant as the miracle man. The patient said she knew there was something special about him when she saw his smile!
The only glitch in the day was the news that he has developed some osteoporosis in his right hip. But, he's going to be started on Fosomax to help that. This is basically a side effect of one of his anti-rejection meds. It could also be because of age, so with those two factors it's understandable.
The heart cath is tomorrow and he will only have to lay flat for 2 hours instead of the 8 Memphis does. Since Bill is allergic to the cath dye I have to premedicate him with some Prednisone, Benadryl and Zantac. I have everything except for the Zantac so will need to go pick some up. Stephanie also said we could actually head home tomorrow if we wanted. But, since we have the room for tomorrow night and will have to be up extremely early tomorrow, we're going to wait until Thursday as originally planned. And, if for some reason we need to be here after we've headed for home, we'll turn around and head back.
The weather was gorgeous today, pleasant temps and sunny for the most part. A little wind kicked up this afternoon that had a little chill to it, but still a good day.
After we pick up the Zantac and something to eat, we'll be in for the night, unless we can see Abner and Faith. We're still playing that by ear. With me not feeling well yesterday and Faith not feeling well Sunday, we still haven't managed to get together.
Another update after the heart cath tomorrow.
Monday, May 6, 2013
Day 1 down, 2 to go. We're pretty tired, me from being awake most of the night sick and Bill being awake most of the night because of me being sick. I think it was just a case of too much food in the last couple of days. We're eating more than we usually do and it caught up with me.
We did get a nice surprise yesterday. We went to Barnes and Noble and ran into the surgeon who went to Miami and harvested the donor heart! Bill of course didn't remember her, but she remembered him and couldn't believe how good he looks.
The lab was backed up this morning by over an hour which made us late to the next appointment. But, they understood and got him right in. We came home and I slept for about and hour and then we tried to figure out his stool/urine collection instructions. Finally got that done and it was time to go back for his bone scan. That test was a piece of cake, only took 10 minutes instead of 20, so we visited with the girls in rehab and then ran by the nursing home to see the gang there.
We got gas on the way back and stopped at the store for some soup and are in for the night. I'm just waiting for it to get dark and for Bill to take the last of his meds. Hopefully I'll sleep better tonight.
Tomorrow is another full day, but these appointments are all in the same section and they are just "talking" appointments, nutrition, social worker, Stephanie and dr. We only saw John and Cindi for a couple of minutes while we were passing in the hall since I wasn't feeling well. And my friend Faith is ill. Maybe we can see her tomorrow.
All for tonight. Pray for restful sleep for both of us.
We did get a nice surprise yesterday. We went to Barnes and Noble and ran into the surgeon who went to Miami and harvested the donor heart! Bill of course didn't remember her, but she remembered him and couldn't believe how good he looks.
The lab was backed up this morning by over an hour which made us late to the next appointment. But, they understood and got him right in. We came home and I slept for about and hour and then we tried to figure out his stool/urine collection instructions. Finally got that done and it was time to go back for his bone scan. That test was a piece of cake, only took 10 minutes instead of 20, so we visited with the girls in rehab and then ran by the nursing home to see the gang there.
We got gas on the way back and stopped at the store for some soup and are in for the night. I'm just waiting for it to get dark and for Bill to take the last of his meds. Hopefully I'll sleep better tonight.
Tomorrow is another full day, but these appointments are all in the same section and they are just "talking" appointments, nutrition, social worker, Stephanie and dr. We only saw John and Cindi for a couple of minutes while we were passing in the hall since I wasn't feeling well. And my friend Faith is ill. Maybe we can see her tomorrow.
All for tonight. Pray for restful sleep for both of us.
Saturday, May 4, 2013
Yesterday was an easy day compared to today! Although it was a longer ride, the rain stopped. Today was a shorter day but it rained hard the entire trip. And, right where the beaches exit branches out from I-95 there was a 4 car pile-up. The info board also had it in the wrong lane so that area was a mess. We sat in traffic for more than 20 minutes.
We got to the hotel before our room was ready so we had a late lunch at our favorite restaurant and then hit the grocery store for a few supplies. We are now checked in and are going to watch the Kentucky Derby and not leave the room until we get hungry tomorrow afternoon. We've got soup for tonight and donuts for breakfast tomorrow. (Don't tell Mayo!)
Since tomorrow is a down day, I won't post anything else until Monday when the fun starts! Have a good week-end!
We got to the hotel before our room was ready so we had a late lunch at our favorite restaurant and then hit the grocery store for a few supplies. We are now checked in and are going to watch the Kentucky Derby and not leave the room until we get hungry tomorrow afternoon. We've got soup for tonight and donuts for breakfast tomorrow. (Don't tell Mayo!)
Since tomorrow is a down day, I won't post anything else until Monday when the fun starts! Have a good week-end!
Friday, May 3, 2013
First day of travel down and I'm beat. We had heavy rain from the house until around Tupelo Mississippi. Wasn't too bad after that but we were both white-knuckled through Memphis at times. That traffic is always crazy and to throw in all of the trucks made it quite the morning. It started to rain again just as we were pulling into our hotel and now it's just a miserable night. We've been to eat and are tucked in for the night. It's supposed to rain tomorrow and Florida has had heavy rain all day today, so tomorrow looks like it will be another stressful day.
Other than the weather we had no problems. Bill is kicked back on the bed with his puzzle book and Wheel of Fortune on. I'm going to finish this and take a nice hot shower to work the kinks out of my back. It's probably going to be an early night so we can get an early start in the morning.
Other than the weather we had no problems. Bill is kicked back on the bed with his puzzle book and Wheel of Fortune on. I'm going to finish this and take a nice hot shower to work the kinks out of my back. It's probably going to be an early night so we can get an early start in the morning.
Thursday, May 2, 2013
The suitcases are packed, the car is full of gas, oil has been changed...I think we're about ready to head back to Mayo for Bill's first yearly checkup! It doesn't seem like it's been a year already! We're only going as far as Ozark Alabama tomorrow, about a 7 hour drive. Then another 7 hours on Saturday. We'll have Sunday to catch our breath and maybe visit with some friends before all the appointments begin Monday.
I talked to Stephanie our coordinator today and after I told her that Bill was out walking, she checked with the drs. and they decided to cancel his treadmill test. She said as long as he is exercising they don't want to take the chance of injury since he can still be unsteady some. So, that frees up a lot of Monday. Now instead of appointments at 8, 8:10, 9, 9:05, 11 and 2 we are free from 9:05 until 2. Now we can have a good breakfast and/or lunch and maybe do some more visiting.
The weather is not supposed to be good tomorrow, lots of rain expected on the route. But, at least it's a familiar route so that will help. As long as we can get through Memphis, Birmingham and Montgomery without it raining too hard, the rest will be a piece of cake.
I'll update daily now until we get the results of the tests and the travel is over. That way family can see what's up. Of course if anything major happens, there will be phone calls and texts. Until tomorrow evening...good night!
I talked to Stephanie our coordinator today and after I told her that Bill was out walking, she checked with the drs. and they decided to cancel his treadmill test. She said as long as he is exercising they don't want to take the chance of injury since he can still be unsteady some. So, that frees up a lot of Monday. Now instead of appointments at 8, 8:10, 9, 9:05, 11 and 2 we are free from 9:05 until 2. Now we can have a good breakfast and/or lunch and maybe do some more visiting.
The weather is not supposed to be good tomorrow, lots of rain expected on the route. But, at least it's a familiar route so that will help. As long as we can get through Memphis, Birmingham and Montgomery without it raining too hard, the rest will be a piece of cake.
I'll update daily now until we get the results of the tests and the travel is over. That way family can see what's up. Of course if anything major happens, there will be phone calls and texts. Until tomorrow evening...good night!
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