Tuesday, October 9, 2012

Finally got my tooth pulled today. It didn't hurt at all and we were home within 2 hours of leaving the house.
The people who signed in in front of me were probably wondering why I got called in first, but I didn't need to have the xrays done. It's a little uncomfortable now and my cheek hurts more than the socket but Aleve has worked. Took some before the numb wore completely off and will take some more when I go to bed. Hopefully won't have a bruise on my cheek...everyone will think Bill whacked me!

We've narrowed down his stomach discomfort to one of his meds, we think. He was fine this morning until I gave him his "after breakfast" pills. He said within 10 minutes his stomach cramped. The antibiotic that he takes can cause stomach cramps. He has to take an antibiotic for the rest of his life. His donor was exposed to the CMV virus which is a mega-virus. Bill had never been exposed to it but because his immune system is being killed by the anti-rejection meds, he has to take the antibiotic. I'm going to track it for a few more days and talk to Dr. Yip Monday at his biopsy to see if there is another one he can take.

We've gotten a taste of fall weather which was wonderful. It was only in the low 70s today and tonight is supposed to get into the upper 50s. I've had the air off and the patio door open all day but turned the air on now. The bedroom gets stuffy if there is no good airflow. The ceiling fan doesn't do much without the air/heat on.

All for tonight. It's just about time for meds and vitals.

Sunday, October 7, 2012

Thank God this week is over!

Bill finally started feeling better yesterday afternoon and ate off and on all day today! Even had seconds tonight for the first time in I don't know how long.

It's a good thing he's turned the corner because my tooth has really acted up today. Nothing is helping, not pain meds or Orajel. And, the dentist is not open tomorrow. So, we're going to get up early Tuesday to get there by 8. Bill has some Lortabs and I may take one tonight when I go to bed so that I can get some sleep. But, I've taken so much Aleve I'm almost afraid to take anything else. We'll have to see when bedtime comes.

We're going to try something this week. Bill had always been in charge of his medications, filling his weekly box, and such. I spent some time yesterday typing up his med list and specifying which box each goes in and then the times they are to be taken. His will need replenished Tuesday or Wednesday and he's going to see if he can do it.

I'm also going to type out a daily routine, as far as meds and vitals go, so that anyone else can see when things need done. I don't know if Bill would be able to do it himself, but if someone else has to do it for some reason, it will be in the front of his transplant book. And that book can't be missed!

All I can think of for tonight. Hopefully we'll both be able to sleep!

Friday, October 5, 2012

I'm glad that this week is almost over, and can soon be put behind us!

I have not been able to get my tooth pulled, but the antibiotics and Aleve are working and I'm pain free. I was supposed to get it pulled yesterday, but Bill was still having his stomach problem and I spent quite a while on the phone with our coordinator to try to find the cause. They finally gave him a laxative similar to what you take for a colonoscopy. He finally is getting empty and seems to be feeling a little better.

He did not go to rehab today since he wanted to stay closer to the bathroom. I told them that I discussed his weight loss with Stephanie and she said just to monitor it. But, it's doing no good to stay close to the bathroom because the water is off while the irrigation for the landscaping is being worked on! They usually let people know that the water is going to be off but this time they didn't. And of course, I was doing laundry when they shut it off!

As I said, I'll be glad when this week is over!

Wednesday, October 3, 2012

We've had a trying few days. Bill had a stomach upset most of the week-end and the meds given for that have turned things the opposite way now. Hopefully you'll be able to figure this out without me being too specific.

He did see the physical therapist Monday instead of having rehab and she was pleased with his progress. She's going to work more with him one on one instead of having him in group. There are too many people and he gets distracted too easily to move from one place to the other without needing prompting. But, she was pleased with his progress and gave us some exercises to do at home.

This afternoon I had a shooting pain go through a tooth and actually thought I was going to be sick from the pain. Not even having children was this painful. Found a walk-in dental clinic that was open until 7 and found that a molar needs to come out. He was going to go ahead and pull it tonight but Bill was overdue for his meds (we were there 3 hours by then), so tomorrow I'm going back to have it pulled. He went ahead and started me on antibiotics and told me just to use Ibuprofen for the pain, but it's not touching it at all. The entire side of my face hurts, into my ear and down into my throat. Laying down is horrible so I'm going to try sleeping on the loveseat. If that doesn't work, I'll just lay my head in my arms on the kitchen island. I have a feeling it's going to be a looonnng night!

Saturday, September 29, 2012

We've had an up and down week. Bill's done well in rehab and on the treadmill, although his leg still bothers him. It bothered him at the house one day and, surprisingly it's not his left leg, but his right one. That puzzles me since the stroke affected his left side. But, he sees the physical therapist Monday so maybe she can figure something out.

He's been a little short tempered a couple of days and it's due to him not drinking enough again. So, I'm forcing liquids in and he's been better.

He finally showed some interest in his computer game this week although he's forgotten most of it and of course he doesn't have the book for it. But, at least he was showing some interest in something other than the TV.

Today was cleaning day and we (I) started to weed things out. My Goodness, we've accumulated a lot of stuff in the last year! Bill was able to help by gathering the trash in the bathroom and breaking down soda boxes. Doesn't sound like much, but for someone who has trouble using hands, it was a big accomplishment.

That's our week in a nutshell. We're going to watch at least part of the Cubs game tonight. Again, they're on the west coast and play late. Enjoy the rest of your week-end!

Tuesday, September 25, 2012

Today I added a new title to my resume! In addition to becoming a nurse, CNA, PT/OT/Speech Therapist, I am now a personal trainer! Bill was on the treadmill today and his leg cramped. As he got it stopped I got him off and over to a weight bench to sit. After a couple of minutes I had him stand and stretch it out before he got back on the treadmill. His leg has been doing that and the girls in rehab are aware of it. No one is sure if it's due to more activity or the stroke and he sees a Physical Therapist again Monday. Maybe she can figure it out.

He did well in rehab yesterday and worked for 1 1/2 hours instead of just an hour. I was talking to our friends from Gulf Breeze and didn't realize how long it had been until he came out! We all went to lunch and then John and Cindi had to go back to Mayo for an appointment. It was really good to see them again. They want us to stop there for the night on our way home. It will add about 2 hours to our 2nd day since we go a little out of our way. Of course, nothing says we can't take 3 days to come home instead of 2. But, that is still a little way off.

We didn't do much after going to the fitness center. It was a gorgeous day, cool and breezy so sat on the patio most of the afternoon. We even ate dinner out there tonight.

His next biopsy has already been scheduled for October 15. Hopefully everything will stay stable with the meds and we'll stay on track to come home. He's scheduled for rehab through December 3, but if we get cut loose before then, rehab will end.

All for tonight. I'm going to watch some more of the Cubs/Rockies game before turning in. I don't like when they play on the west coast, especially since we are on the east coast. The games start way too late for me!

Sunday, September 23, 2012

I hadn't realized that it had been so long since the last post! We had a very boring week, rehab on Weds. and Fri. and a fairly quiet week-end.

Saturday was laundry day and groceries and general picking up. Sunday was just a lazy day. Did do some shopping for some clothes for Bill. He has lost so much weight that none of his clothes fit. So, we got him some new stuff before he walks out of his pants!

This week looks to be quieter than last week since the only thing he has scheduled is rehab. But, some friends are back, at least for tomorrow, from Gulf Breeze, so we're hoping to see them. May also try to have lunch with another couple this week.

Other than this, there's not much happening here. The weather has been great and is supposed to be cooler this week. I'm ready for some good fall weather, although I don't think I'll see it this year either. I saw some pictures on Facebook this week of home and the cotton is ready. I do miss seeing those white fields, but I have not missed the defoliating!