Saturday, January 16, 2016

We got home Wednesday afternoon and the trip home was uneventful, just long. We left our hotel in Alabama at 5:09 am and pulled into the driveway at 2:05. We only stopped once for gas and breakfast. We ordered pizza for supper and were in bed by 7:30! 

Thursday I got some groceries, only a few to get us through the week-end and picked up and restarted the mail. Yesterday everything caught up and I had absolutely no energy, so didn't do much of anything.

We were able to get the hose for the oxygen concentrator and got both of the tanks filled before leaving Florida. I've got to get a thank you card out to JC Home Medical Supply. They were fantastic. My sister has suggested that we switch suppliers and go with one that is nationwide. That way there won't be this problem again.

Bill has done well without the oxygen, although he still gets a little winded when he's active. The Dr. gave me some numbers to work with to show when he needs the oxygen and when he doesn't. He wants him weaned off of it if possible, and I know Bill wants off of it.

Stephanie called Thursday and said that Dr. Leoni wants Bill to see a pulmonologist sooner rather than later. No-one is coming out and saying anything about what was seen on the scan, which bothers me. I would rather know what we are facing sooner rather than later. Evidently there is something in the written report that is causing some alarm. 

We were told that it would probably take 8 weeks to get an appointment, but again, when Emily read what the report said to the pulmonologists office, they were able to schedule him for the 27th. I'm to let Stephanie know Tuesday and then she will cancel the ones at Mayo. The dr. we are seeing is in Memphis and has been affiliated with the transplant program there. Of course we would rather be at Mayo, but if this is something that will take multiple visits or treatments, it's better for it to be here...or we would have to move. 

I noticed that we weren't home 2 hours and my throat was hurting and I was all stuffy so maybe we do need to move from this area. There are a lot of breathing/lung problems here because of all the chemicals used on the cotton fields. We are told that they are not harmful to humans, animals or houseplants, yet when they are spraying, whether it is at the beginning of the growing season or during defoliation, the houses around the fields don't have any plants around them and I can feel my throat closing just to breathe it. Something to think about.

We don't have any plans for the coming week and will probably be staying in. The weather has again been 60 and today it's 40 and we're looking at a high of 30 on Monday. Other than doing what needs to be done, we're staying in where it's warm.

Until next week...

1 comment:

  1. That's scary about the chemical exposures! Glad you guys made it home safe. Stay warm!

    ReplyDelete