What a day!!! Up at 5:30 and at the clinic by 7 to start the testing. Labs, chest x-ray and ekg. Bill finally got to eat something then but was very weak. They took 15 tubes of blood, and since it was all fasting labs he didn't have anything in him to boost him up. We then went up to the floor for his pulmonary function test and they were able to get him in about an hour early. He got finished before I had to go to the caregiver class. We then met up just in time for his allergy tests and then could leave for an hour and half.
After a quick trip to McDonalds for lunch and the gas station for a fill-up it was back for an easier afternoon. We met with our coordinator Julie for about an hour and learned so much more than we had learned in Memphis. We were able to get in to see our social worker Elizabeth an hour earlier and that is a good thing since we were with her for nearly 2 hours! She also gave us some homework to do and a wealth of information. We are really on brain overload!
Got back to the hotel and made a grocery list and went shopping. We are both so tired that I don't know if either of us feels like cooking, but we also don't feel like going out. I did pick up some deli tuna salad and egg salad so maybe it will just be sandwiches tonight.
After listening to everything today, we are really disappointed that we went through the process in Memphis. We were not told most of the stuff we learned today about the process. And it seems that the information should be pretty standard at any center. For example no eating at buffets or salad bars after transplant because you don't know who handled the utensils before you and if they were sick or not. Or, no rare meat and unprocessed egg or dairy products, raw fish, etc. Memphis had told us none of this!
But, we will just chalk it up to experience and move on. Tomorrow brings the infectious disease dr and then the dreaded treadmill test, before seeing the nurse practitioner.
Oh yes, we told Julie that his blood pressure is staying very low and when she took it the highest she could get for a top number was 78! They have taken him off the Diovan to see if that is what was doing it.
So, all for tonight. Have a good night everyone!
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