This was the first really good day in a long time! And, it's probably going to be a rather short post.

He ate all of his breakfast for the first time in a long time, but barely ate lunch. But, lunch was spaghetti and he has a hard time eating that. The noodles won't curl on the fork and even if I cut it up he has a hard time. But, he probably wasn't that hungry after eating all of his breakfast.

He got in his chair about 10:30 and didn't get back into bed until after 3. He did nap some in his chair, but don't we all do that?

He worked with physical therapy. He didn't do any walking, but he did all of his leg exercises and then stood for a few minutes. He was pretty tired after that, and it was harder for his because they were steadily lowering his oxygen all day!

When I got there this morning he was set on 12 liters and was in the upper 90s. His nurse put him down to 10 and he still maintained really well, so she bumped him to 9. He did have to go back up to 10 for just a bit when he got into his chair, but then back to 9 and it wasn't long before he was at 8. It did get harder for him to keep his sats up, but as long as he just stayed really relaxed he did fine, even hitting 100% while he was napping.

They tried putting him down to 7 but he had a really hard time keeping his numbers up, so when he got back into bed they put him back to 8. The nurse noticed that when he moves he seems to get really anxious, and he does. I don't know what we're going to do about that since they don't want to give him anything.

The only problem he had was his blood sugar dropped very low during the night. They got it up with some orange juice but had to hold his morning insulin. Dr. Oktied told the nurses to see what he was eating, if it was meat protein and not carbs they could hold the insulin if necessary, depending on his numbers. So, they will keep an eye on it. It was pretty odd for it to drop because the steroid he's on is a really high dose and should not only raise his blood sugar, but cause him to be really hungry. 

That's how our day went, not a bad one at all. We'll see how it goes tomorrow!