Monday, April 27, 2020

It wasn't quite as busy yesterday as it was on Saturday, but Bill was wide awake and talking again. He told me I was cute when I walked in and said he felt OK. He was watching movies on Starz Encore.

The central line is in the right side of his neck. Ella said he started to give them a hard time about it until they got it numb and then he was fine. I suspect they didn't explain what they were going to do in simple enough terms and give him time to process it. 

He was not on any fluids or meds at all and his numbers looked really good. Ella said she had to draw blood twice to repeat a lab because he hematocrit and dropped from 25 to 21 so she wanted to repeat it just in case. She must have also told them to go ahead and type and cross-match because she didn't draw any more for that.

Dr. Edwards did want him to have 2 units of blood since it was such a big drop and he attributed it to the heparin which started the bladder bleed again. It doesn't seem like there would be that big a drop in such a short period of time. And the blood that was in the urine only turned it a dark pink, not a dark red, so it wasn't straight blood like before. Anyway, it really doesn't matter at this point, he got 2 units of blood. The last one was just finishing when I left last night.

Dr. Threlkeld said he's looking better and better, and there was almost nothing when Dr. Henderson wanted him suctioned. Andrea from respiratory was there when he came in. He said he sounded very coarse, but when she suctioned there was almost nothing, just a little white stuff. She said he could have sounded coarse because he was getting a breathing treatment when he listened to him which could have changed the sound.

Dr. French was pleased with the way the PEG site looked, although the skin was red again and seeping some blood. But he and Ella both thought it looked like whoever had changed it last didn't put any, or enough of the creams on it and the gauze stuck some. Then when it was checked it pulled. So, we are still just watching it for now.

Dr. Morris is the one who changed the formula back to Nepro, not Dr. Edwards. And his creatinine was 1.2 yesterday which is normal. So he was pleased with that. 

When Dr. Edwards came in he said that since clots from the upper extremities don't usually travel to the lungs it was "the better part of valor" to stop the heparin because of the bladder bleed. As our family knows, blood clots in the legs DO travel to the lungs. But, Bill has none in his legs as of the last ultrasounds, so we're safe there. He also wanted Bill back in the chair, so they were going to move him after I left.

His right arm was not swollen yesterday, but his left one was. And his scrotum was still swollen, but not as bad as before. He also ran a low grade fever. It started at 99.9 but consistently went down without any medication. He was not actually chilling, but he would go from hot to cold. We would take the blankets off and just have a sheet partially on and then he would say he was cold so we would put a blanket back on. The last check I remember, and Ella was checking it frequently, was 98.9. I reminded her that his normal was 97.5.

He told me he loved me when I told him it was time for me to leave. He said there would be no wild parties, but he drew the line at no dancing girls or shenanigans! Then he said he would try to behave! Hopefully he slept in the night since he had been awake all day, except for when we both took a little nap.

So, that's the best week he's had in a long time. I hope his progress continues. And no, I'm not thinking that he's going to get all better and get to come home. I still know that he will not progress that much, but it does make these easier for both of us.

Have a good week everyone! It doesn't seem like April is in its last few days already, but for those of you staying in all the time, I imagine it is dragging by. I actually would welcome being able to stay home, but that is impossible so there's no use dwelling on it!

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