Wednesday, August 1, 2012

So far so good as far as food goes. Bill is eating everything he is brought and drinking his Ensure between meals. Lisa has even ordered more at breakfast for him. Since we didn't know how he would do when we filled out the menus, we ordered lightly. But he's been hungrier so Lisa has gotten him more to eat.

We did go out with Aimee, Lee and Dani to a favorite seafood restaurant and Bill ate a gigantic salmon steak. It was probably 8 oz. He ate all of it and a few fries and enjoyed it all. We were all pretty tired by the time we called it a night. They all went to Orlando today to Sea World and should be back some time tomorrow.

The Director of Nursing, Rosemary, told us yesterday that he's getting really close to discharge. The main hold-up is with Speech Therapy. His speech is pretty good but they also work with cognition and word retrieval and since they had to concentrate so much on swallowing, they are just now really working on the other aspects. But, he's doing quite well with it. They are encouraging him to start a journal to help with memory. His long term memory seems fine, it's the short term that has suffered. He also has a problem with word recall, but can usually retrieve the word with 1 or 2 hints.

He maintained his weight from Monday to today, no change either way. I don't know how long they are going to give him before making the decision about removing the tube. Hopefully they will make the decision soon. I wasn't there today when the dressing was changed on his leg, but it looked fantastic when it was changed yesterday. They are still trying to get a closer appointment to have the surgeon check it but have not heard anything yet.

Bill has gotten it in his head that when we leave the center, we will be going home, not to the condo, but home. I've told him several times that it will be up to Dr. Yip as to when we can go home, and I think I've explained it here, but if not, here goes again. And if it's a repeat, skip over it. He has to be totall off of the Prednisone for 2 months before he can go home. He's on 10 mg now and, if Dr. Yip stays true to form, it should drop to 5 mg at this month's biopsy and then be taken off in September. That would put the 2 month period Oct and Nov, with a target date of going home December. We would, maybe, have to come back in either Feb or March for another biopsy and definitely in May for the 1 year checkup. So, Christmas is "do-able". Bill has just decided we are going home now and it's going to be quite a let down when it's just to the condo.

I also think that Bill doesn't remember being at the condo at all. When we took our drive Sunday, he didn't recognize the area and it was the route to the condo. Yet he recognized the restaurant last night. Maybe when we actually come to the condo it will jar his memory.

All for tonight. I told Bill before I left not to do anything foolish tonight so that I will get called. I haven't slept well the last 2 nights and plan on taking a sleeping pill tonight so I don't want to have to go out in the middle of the night! He's been pretty good lately and I think he was pretty tired tonight too. He thought he would go to bed about 9 and maybe they will remember to put his urinal beside the bed. That's the main reason he gets up! Hope everyone has a good night!

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