Decided to go ahead and update now instead of waiting until tonight or tomorrow morning. He's been in CPAP since about 8:30 this morning and he's done fine. His oxygen has also been lowered to 45%. This trial is for a minimum o of 8 hours and he can go up to 12 hours if he wants and is still doing well. Stephanie said that when he can go 2 days they will go to trach collar. She didn't say if she meant 48 continues hours or 2 12 hour sessions back to back. She's trying to fast track him since she knows how much he wants to talk. She did say the was bo change in his xray so it had not worsened.
He slept most of the morning. He was given his Seroquel at 8 but he was given some dilaudid at midnight. He says he didn't ask for anything for pain and said he slept all night. The nurse said she was just told that he got a little agitated then so it's a mystery.
He's been in his chair for nearly 2 hours now and again he sat on the edge of the bed first and then stood and pivoted to the chair. He did drop to 87 but recovered fast. He also worked with OT, moving the rings again and then using big clothes pins. Without her telling him he sorted them by color. It eas harder for him to get them off than to pin them.
They had to reposition his inner tube. It keeps coming ot for some reason. But the got it back in and he quit laboring to breathe. He wasn't actually having trouble breathing he just thought and felt like he couldn't breathe.
He hasn't had speech yet but she's peeked in a couple of times so it may yet happen. Right now he's watching ID murders and is nice and calm.
So not a long post but another one with progress.
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