Tuesday, July 3, 2012

Bill was up and waiting in the lobby by the nurses station when I got there this morning! His nurse told me that he told her he just had to get out of that room! We went back in and got partially dressed by the time Lisa came in to dress him. He had shaved and had his shirt on and buttoned. All she had to do was his bottom half and his shoes.

He had some pudding with speech therapy as soon as he was done and then he went straight to physical therapy. He was pretty pooped by then and came back to his room to rest for awhle. Then it was off to OT with Linda who was very pleased that he had buttoned his shirt. He practiced more of that with her and strung some beads and started to make a potholder. All of those things seem simple and juvenile, until you stop and think that he has a hard time still with fine motor skills and motor planning. He also powered his wheelchair by himself most of the time. He does fine on the hard floors, but has trouble with carpet.

After OT JoEllen the speech pathologist came back in bearing a gift. He actually got to eat about 1/2 a bowl of cream soup and it was the first thing he said tasted good. He also fed himself and wasn't too shaky. His anti-rejection meds cause tremors so soup is a challenge without adding a stroke on top of it.

He has gotten the idea in his head that when he goes to the dr this week and again for the biopsy that there's going to be an operation to fix his throat and breathing so that he can eat again. We've tried telling him that there are no more operations or procedures and that the biopsy is for his heart. We've told him that the only way to fix it is for him to work really hard.

Again, meds were on time tonight and food hooked up only a little late, but that was our fault. He wanted to go outside for a bit before having to settle in for the night.

He's still wanting us to plan a trip somewhere so we're going to do that in the next few days just to give us something to do. Linda also wants him to start doing his word search puzzles again and checking his email. I'm not going to bring his laptop to him since it weighs a ton, but there is a computer he can use to do that. We also have to get another tray table for his room. The one that's in there is being used by the nurses for all of his gtube supplies so he has nothing to use to practice some of the things Linda wants him to do. But, she said that we should be able to get another one.

So, it was another good day with progress made. We'll see how tomorrow goes.

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