Today we were back on track until late this afternoon. Bill did quite well in PT this morning and made a complete "circuit" without having to sit and rest. Because he "walks" his wheelchair so much wandering his hamstrings have gotten very strong now and he's doing much better walking and standing. He also did well in OT and he may get to go upstairs tomorrow to play the wii and go bowling. He also ate graham crackers and had no problems at all. This therapist let him eat and just observed. Didn't ask him about swallowing a lot. She's going to try to bring him some cream of wheat in the morning, or have some French toast pureed. I don't know how that would be, but we'll see.
He did get a little sad this afternoon. He's so tired of being confined and not being able to see other places. We're going to practice getting in and out of the car this week so I can start taking him to his appointments. If it goes well I'm going to see if I can take him out for a couple of hours this weekend for a ride.
His dressing change was painful for him today. It looked like his skin has gotten irritated again. But, the wound looks really good and there was almost no drainage in the canister. She'll take measurements again Wednesday, but a quick check today showed it had gone down another 1/2 cm in length. His vac has quit charging so they've had to order a new one. Hopefully it was on the truck that came as I was leaving. We've had to tape the cord into the machine to get it to charge.
Part of Bill's behavior problem the past week was due to a urinary tract infection. They finally told me that today and he's been on Levaquin again. He's also been put on Advair. He doesn't need the breathing treatments any more and the Advair is just a precaution so that he doesn't start getting congested again. Most of that comes from not always swallowing.
John's family got home last night and Don and Shirley have made it to their friends in Georgia so it's just the two of us again. Aimee is supposed to come the end of July and Mary Rose is coming the middle of August. We'll finally get to meet William.
We're entering a phase where there may not be a lot happening on a daily basis. He'll continue to get the three therapies each day through the week. So, if there isn't a post, don't worry. It will just mean that nothing really new is happening. Of course I will always update the major accomplishments and results of any appointments at Mayo. So keep checking and keep praying.
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