Sunday, July 22, 2012

YAY! The "good" Bill was around all day yesterday!

We had a lovely outing. Drove to St. Augustine along the coast road. Crossed 3 big bridges, one of them a drawbridge, and since it was a pretty day there were lots of boats out. We didn't get out anywhere, just drove through town and to the beach there. Unfortunately the towns in this area built up the dunes so that you can't park and just watch the water. But, along the coast road, there was a closed restaurant with a parking lot that overlooked the water. We were able to park there for a time and saw some "black fins" rise out of the water. Don't know what kind of fish they were but they were pretty close to shore. Some swimmers saw them too but didn't panic so I don't imagine there was any danger. All in all we were gone about 3 hours. We didn't have any trouble in and out of the car although I had to remind Bill of the new way to get in and out of the car. He did get pretty tired walking since we didn't take his wheelchair and the distance he did walk was a little longer than he usually walks.

He didn't make a fuss when it was time for meds and food and there was no complaining through the day about not getting anything to eat. His med nurse gave the meds on time but didn't know how to do the Prograf (the one under his tongue). He must not have been inclined to read all of the instructions in the computer on the method of delivery.

There was a problem with his feeding tube, the line kept clogging. We know that it was from the pump to the port because it flushed wonderfully and there was no problem with the meds. I left before the problem was fixed, mainly because I knew the night nurse coming in and knew that she could fix it. That's part of the problem with the staff here. They have part time nurses come in on week-ends for a 4 hour shift and they're not familiar with everything.

Bill was very clear minded most of the day. He looked at his calendar several times and read about his upcoming biopsy tomorrow and the 2 granddaughter birthdays this coming week. He even reminded me that we need to call them on Friday!

This morning is the church service and we are going to that. Lisa was going to make sure he was dressed and ready to go on time. And tomorrow is his biopsy. It will be a long day since it starts with having to be at Mayo at 7:30. We should be back by 10:30 but then they will do therapy all afternoon so he will be pretty tired. I just have to remind them to disconnect his food at midnight and to hold the Prograf and Cellcept in the morning and give them to me to take with us. I also have to remember to take all of the supplies to give him the meds after the biopsy and his log book...I need to make a list!

I hope everyone has a great Sunday!

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