Friday, July 6, 2012

Had a very long day yesterday but was a very good day overall. Up and out to the dr for all morning appts. The appointments went very well and Dr. Agnew and his PA Rob were both very pleased with the way the wound looks. Rob was also impressed with Bill's overall progress. He was able to walk from the wheelchair to the exam table and back, with help of course, and was very steady.

We also managed a couple of pitstops with transfers from the chair to the toilet and back just like we had been doing them for years. We sat outside at the pond at Mayo for about an hour in between appointments since it wasn't unbearably hot and there was a nice breeze. The main drawback was waiting an hour for transportation back to the center. We start practicing car transfers next week so that we can go ourselves next time. With the valets and patient aides at Mayo we'll be fine there, it's just in and out of the vehicle at Cypress.

Rehabs also went well and Bill got some coffee! He didn't like it until they put some sugar in it but then he said it tasted good. Of course he only got a few spoonfuls and it was thickened some, but it was coffee. Today she's bringing him coffee and a scrambled egg.

He was still very confused when I got there and Lisa, the CNA, said that he was very confused and talking about the man coming in and being rude to him and stealing things. She has checked the schedule and there were no male nurses working. Bill has told us this several times and putting it together, it's after he's had the Percocet for the dressing change. I had noticed that he starts talking about things that don't make sense after he's been medicated so I'll have to see if they can go back to just 1, especially since they aren't using as much of the seal tape. I've also asked that they try to get the Ambien changed to just Benadryl at night. His mind is still cloudy enough at times without adding the extra chemicals. His anti-rejection meds can also have an adverse reaction. We'll see how removing these two drugs goes before I call Stephanie about the other drugs. The last time I mentioned this to them I was told it was all the stroke but now I don't think so. Besides, who spends the most time with him?

His med nurse last night did not know how to give the Prograf except that it went under his tongue. She said that the computer did not specify how it was to be given except for sublingual. I didn't tell her that it does say how since I have a printout. The capsule did melt but it took awhile and Bill had to hold it under his tongue until it was done. It seems like this battle will never end, until he's able to take them by mouth.

All for this time. I think I hit all the highlights of the day.

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