Monday, May 14, 2012

So far a quiet day. Still no word on the MRI. The external pacing wires were cut today so that's a step in the right direction. His hands had to be restrained last night. As the nurse was suctioning he vent he raised both arms toward the vent. He's had some more spontaneous movement and is squeezing more with his right hand. He's stretching his legs and tried to give a thumbs up. But, he's staying asleep more and totally ignores me now, going so far as to turn his head or cut his eyes away. But, I just go to the other side of the bed.

I forgot to mention yesterday that the dobutamine has been stopped and, except for a little potassium to counter-act the lasix, and occasionally a little insulin, he's on only his transplant drugs, 1 antibiotic, 2 immuno-suppressants and 1 steroid. Such a difference from where we were a year ago with 14 different meds!

We're getting closer to having to make a decision about a tracheotomy. Even though he is still breathing on his own, he's not aware enough to try to cough and clear his lungs. This poses a problem for pneumonia and since he is on the immuno-suppressants, he doesn't need any other complications. They only like to leave a vent in for 2 weeks and it will be 14 days on Thursday. The trach would not be permanent but it would still give him some support and also a way to keep him suctioned.

I was able to get my bookkeeping done today and I'm just about to finish a knitting project. Should have it done today and have the next one lined up.

All for this post, hopefully we'll hear about the MRI soon.

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