Wednesday, May 9, 2012

Sorry there were no updates throughout the day. Emily and I were kept busy trying to keep Bill focused. He was totally without sedation since about 2 am. He finally started moving his arms right after we got there this morning and shortly after that squeezed my thumb. He is having trouble focusing his eyes but will try to make eye contact if you keep after him long enough. So, we spent a lot of time holding his hands and talking to him. His right eye has been kind of lazy most of the day but before we left it was looking more normal.

His nurse today has also worked in neurology and she was wonderful. She knew some little tricks to try to find Bill, and she told us that he is in there. Most of the time he had a very bewildered look on his face like he's trying to piece things together. We wonder if he has recognized that Emily is here and she wasn't here for the transplant so he may be trying to figure out why she has come.

He got mad right before we came home for the night. He finally looked at me and then frowned and wouldn't stop. Linda, his nurse, suctioned his vent and was cleaning his mouth when he stuck out his tongue at her. She noticed then that he is getting a yeast infection from all of the antibiotics. He was also started on one of his anti-rejection drugs and it is given under the tongue. When she tried to give it to him he bit down on his vent and wouldn't open his mouth! But, good nurse that she is, managed to get it in. He was still clamped shut and frowning when we left, but he had closed his eyes and looked like he was ready to sleep.

If he has not made more progress tomorrow, the CT scan will be done. Linda doesn't think there is any damage, but she agrees that it is best to find out early so that it can be dealt with sooner rather than later.

Sadly, we did not see any of Andy's family today so we are assuming that he passed away in the night. So sad to lose someone so young. I just pray the family will find the strength to get through the next days.

I'll try to do better tomorrow with updating. Hopefully he will be more alert and not require so much cajoling.

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